Tag: advocacy

Do I Look Sick Enough For You?

Post author By Nikki Sf
Post date May 3, 2020
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“Be kind, for everyone you meet is fighting is battle you know nothing about” – Wendy Mass There are many predetermined beliefs about what someone who is chronically ill or someone who has a mental illness should look and act like, but #myinvisibleproject set out to change that. My chronic illnesses are not visible. I’ve heard […]

Tags advocacy, chronic illness, chronic migraine, invisible illness, mental illness

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Headache on the Hill 2020

Post author By Nikki Sf
Post date February 13, 2020
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This year I was honored to attend the 13th annual Headache on the Hill as a patient advocate. I traveled to Washington D.C. along with 179 patient advocates, caregivers, and headache physicians to advocate for a common ‘“ask.” Although we all share a common connection, migraine disease, we come from different walks of life, across […]

Tags advocacy, chronic illness, chronic migraine, headache, headache on the hill, migraine, opioid workforce act, pain, Washington DC